Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2023 Jan 26.
doi: 10.4274/jcrpe.galenos.2023.2022-8-4. Online ahead of print.

Chronic Disease Management of Children Followed with Type 1 Diabetes Mellitus

Affiliations

Chronic Disease Management of Children Followed with Type 1 Diabetes Mellitus

Senay Guven Baysal et al. J Clin Res Pediatr Endocrinol. .

Abstract

Objective: With the diagnosis of chronic illness in children, a stressful period is likely to begin in children and their families. The aim of this study was to investigate the factors affecting chronic disease management by the parents of children with T1DM diagnosed with Type 1 Diabetes Mellitus (T1DM).

Methods: The sample consisted of 110 children, aged between 4-17 and their mothers. The patients had been diagnosed with T1DM for at least one year, and had attended pediatric endocrinology outpatients or were hospitalized in a single center. First, sociodemographic information about the child with T1DM were obtained. Then, the "Family Management Measure" (FaMM) was applied. The FaMM is constructed to measure family functioning and management in families who have a child with a chronic illness.

Results: Paternal years of education (p=0.036), family income (p=0.008), insulin pump use (p=0.011), time elapsed after diagnosis (p=0.048) positively affected both the management of T1DM and the child's daily life but presence of chronic diseases in addition to T1DM (p=0.004) negatively affected diabetes management. Higher maternal education year (p=0.013) and family income level (p=0.001) increased parental mutuality scores. However, as the time after diagnosis increased, parental mutuality scores decreased.

Conclusion: It is important to evaluate the child with chronic disease with a biopsychosocial approach. This approach aims to evaluate the problems of the child and his/her family who experience the disease with a holistic approach.

Keywords: Type 1 diabetes mellitus; children; chronic disease; family management measure.